Friday, August 28, 2015

Status Quo

I had my monthly visit to my Pain Doctor last week and on this particular visit I was seeing his PA. She is a very nice lady and I was giving her an update on how I have been feeling over the last month along with how I was functioning in my daily routines (work,being the #1 Dad & Husband) with the medications I was on. I reminded her that I was going to be going to Shands in Gainesville on September 22 in order to see what the next steps could be in dealing with my internal abdomen/scar tissue issues. I told her that there are days I feel fine with the medication and levels that I take and then there are some days that just suck and it feels like someone is trying to shove a baseball through my mid section, but I need to keep focused because kids need to eat, infants rocked to sleep, and bills need to be paid. She said, "OK, our goal is to keep you 'status quo' until the end of September".  What does it say about your life when a key person whom you rely on's goal is to keep you "status quo"?

I didn't know what to make of that statement. Has all of the effort I have been putting in over the last few years in my goal to live a normal life gone for not?  Sometimes I feel that certain medical personnel just want to write you more prescriptions to keep you on a constant high and do not care about the emotional or physical consequences it has on their patients. Are they putting any effort into finding a solution to my issues or is it I will pretend to care for 5 minutes, write your scripts, send you on your way, and most important,bill your insurance company?

Sometimes I feel that I am all alone on an island when it comes to dealing with medical professionals. They don't get that I don't want to spend my life on disability and that I want to have a productive life. I want them to realize that it takes all of my effort to ignore the constant pain that I feel through out the upper half of my body and go forward in accomplishing my tasks for the day. If I am going to be successful in my "Battle to Be Normal" then I need my medical team to be on the same page as me and sorry "status quo" will not suffice!  I'm not going to "settle" and I will keep fighting!


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